When emergencies happen, being prepared can make all the difference—especially for families of children with special needs. While we may focus on daily routines like meal planning and errands, it’s easy to overlook planning for the unexpected.
For instance, one mom shared her experience: Her teenage son, who is non-verbal and has autism and epilepsy, had a severe seizure. She had posted basic seizure instructions on his bedroom door, but when paramedics arrived, they suggested keeping a more detailed medical history on hand. It was a wake-up call to ensure all critical information is easily accessible—not just for herself, but for anyone caring for her son.
Here’s a checklist to help you prepare:
Medical Information: Include medications (prescription and non-prescription), allergies, diagnoses, triggers, and calming methods.
Care Details: Ability to tolerate exams, behavioral triggers, or dietary concerns.
Emergency Contacts: Provide multiple contacts, guardianship info, and next of kin.
Additional Info: Insurance, preferred hospital, and crisis intervention team availability.
Tips for Emergency Calls When calling 911, share specific details like:
Diagnoses (e.g., autism or intellectual disabilities).
Communication preferences (verbal/non-verbal, instructions).
Behavioral triggers and calming methods. You can also request to turn off lights or sirens if they might upset your loved one.
If there are behavioral needs, request dispatch sends an autism or Crisis Intervention Team (CIT) trained first responder.
Tools for Preparedness Consider using tools like the to store medical details in accessible places like your fridge, car, or emergency kit. Kits should include medications, clothing, favorite items, and emergency funds.
Being proactive takes time but provides peace of mind in difficult moments. Emergencies are unpredictable, but thoughtful preparation can protect and support our loved ones when it matters most.
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